At just 18 years old, Beandri Booysen has faced more challenges than most people do in a lifetime. She is one of only 150 children and young adults worldwide diagnosed with Hutchinson-Gilford Progeria Syndrome, a rare genetic condition that causes children to age four to eight times faster than their peers.
Without treatment, children with Progeria die of heart disease at an average age of 14.5 years. Despite these odds, Beandri continues to inspire thousands with her vibrant personality and courage.
Now, however, she faces her biggest challenge yet: a severe heart condition that requires urgent open-heart surgery.
Beandri, who lives in Doornpoort, Pretoria, is beloved by her 269.2K TikTok followers and whose videos have garnered over 372K likes. She has been diagnosed with aortic stenosis – a condition where her aortic valve is dangerously obstructed, limiting blood flow from her heart. To make matters worse, calcification in her aorta is adding further complications. Without immediate surgery, Beandri’s health is at serious risk.
Through all of this, Beandri remains steadfast and hopeful. “I’ve been living with Progeria since birth, and I am used to it. I’ve learned through the years to deal with the challenges that come over my path, from my shoulders dislocating to surgeries on my hips and eyes. I face everything God brings into my life,” she shares.
Her family, whom she credits with shaping her strength, has been a vital source of support. “My family supported me by raising me as a ‘normal’ child, not one that is different. This made me stronger and the person I am today,” Beandri explains. “I now understand why they did that—to help me face the haters and obstacles in my daily life.”
While the family’s medical aid covers part of the surgery, it is not enough to cover the full cost of the procedure, hospitalisation, or the essential aftercare Beandri will need. Her parents, Pieter and Bea, set up a crowdfunding campaign on BackaBuddy to raise an estimated additional R150,000 to cover Beandri’s medical needs. To date, 48 generous donors have contributed to the BackaBuddy campaign. In addition, Caring Daisies, a Pretoria-based charity, has been incredible in helping the family, offering vital support and resources during this challenging time.
Beandri’s positivity shines brightly in her TikTok presence, where she continues to inspire and motivate her audience. “I post to motivate people and keep them positive,” she says. “My goal is to raise awareness about other special needs individuals and show that everyone is different and unique in their own way.”
As Beandri prepares for her heart surgery, scheduled for 10 October, with the procedure expected to start at 8am, she remains realistic yet hopeful. She will be admitted to the hospital on the afternoon of 9 October to prepare for the operation.
“Please don’t feel sorry for me, because I don’t feel sorry for myself,” Beandri says with her characteristic resilience. “I am very positive, but I can have my down moments too. I’m afraid of any surgery, but I know the Lord is always with me. Every surgery carries risks, but I have an amazing support team—God has placed incredible doctors in my life. All my other doctors have a real passion for their work.”
Despite her challenges, Beandri remains active and full of life. Her zest for life is evident in every video she shares, and her online community continues to rally around her with unwavering support.
Her gratitude toward those supporting her on this journey is clear: “My family, friends, and supporters from all over social media and the world—I appreciate every one of you.”
Her parents also express their deep gratitude: “Beandri’s courage and strength have always amazed us, but now we are calling on the kindness of others to help her during this critical time. We are deeply appreciative of every donation, no matter the size, as it brings us closer to getting her the care she desperately needs.”
Any funds raised will go toward Beandri’s ongoing medical expenses, covering medical aid shortfalls, aftercare, medications, specialist visits, and everything necessary to ensure her comfort and well-being.
Support Beandri’s BackaBuddy Campaign: https://www.backabuddy.co.za/campaign/beandri-bbs-heart-surgery
Join Beandri’s Facebook Community: https://www.facebook.com/groups/beandri/members
WhatsApp Community: https://chat.whatsapp.com/Ga3Vxq74kya5DvG38qQTu0
Follow Beandri on TikTok: https://www.tiktok.com/@bb_unique_2005?_t=8pngRbOcLPq&_r=1
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Author: Zane Groenewald from BackaBuddy on behalf of Beandri Booysen.
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